When Jamie Bérubé was born with Down syndrome in 1991, he was immediately subject to the
medical procedures, insurance guidelines, policies, and representations that surround every child our society
designates as disabled. In this wrenching yet ultimately inspiring book, Jamie's father, literary scholar Michael
Bérubé, describes not only the challenges of raising his son but the challenge of seeing him as a person
rather than as a medical, genetic, or social problem.
Michael Bérubé is director of the program for research in the humanities at the University of Illinois at Champaign-Urbana. He is the author of five books, including Public Access: Literary Theory and American Cultural Politics, and has written for The New Yorker, The Village Voice, and many academic journals. He lives in Champaign, Illinois, with his wife, Janet Lyon, and their two sons, Nick and James.
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